Biliary dyskinesia - What are my options to get cured and lead a life!!

I have started this blog , so that the entire Biliary Dyskinesia patients can  take a right approach including me who is  suffering for past 10 years .This is exclusively for Bililary Dyskinesia patients who does not have gall stones.

About my background.
I'm asian 32 year old male from India , 5'7 feet height,weight 70kg - as of Apr 26,2013.No drinking or smoking.No bad habits

Let me start my story.

It started during 18 years of age when i was studing in my college,where i have to start at 6.00am and reach college by 8.00 am, i have to eat at 6.30am when i wont feel hungry and at 10.00 am where i feel hungry , but i cannot eat in middle of the class.I can see really some acidity forming in my stomach during that time.But no problems at all.

Same story during my 2nd college degree at age of 21.Here too no problems at all.

at Age 24,Now its time to search for jobs , but none to find  and not easy to get bcoz of 9/11  during that time.However i got a job , but where i have to pay him some amount for training.However later on he did not provide me training nor job , which took me in to lot of stress and not able to take a good sleep at night.

Age -24  -It  started with constipation,and i felt i was getting some kind of internal hemmoraoids,doctor advised to take a colonoscopy test and mentioned there is no issues , just asked me  to have more fruits and veggies and no need for surgery.Also i forgot to tell, that i finally landed as a software engineer.

Age 25 - But still my constipation continued,and lot of acid reflux going through,doctor advised to take endoscopy test this time , took the test and they found more acidity flow  and took abdomen scan for gallbladder.but said its very common and not of much cause.Gived some pantraprozole and omperazole.But still the problem i was having like once in a while say for every 3 months i might have this problem and not on daily basis, i use to eat lot of junk and oily foods during that time.

Age 26/27 -It time for me to start my work in USA, but at back of my mind i always used to think about  my stomach issues and i was really skipping the option, but i was really interested to see USA.I was weighing almost 76 kgs compared to my ideal weight of 65kgs.

I put a lot of postive thoughts on my mind, this is the time where i started my rigourous excercise and Diet, i was eating lot of vegetable which are boiled and reduced lot of carbo hydrate, getting early in morning go for walk and jogging , even though i'm not able to do it .. i started slowly and was able to do rigoursly .During this time the stomach issues with acidity and acid reflux got reduced very much, however i was going through these issues listed below during that time -
Issues : -
I have to eat when i feel hungry, other wise i can feel the acidity in my stomach and growling sound from acid reflux and make me very tired during that time , once i have the food , then body comes to a normal state.I even felt it might be some diabetic problem  and took the test and results are negative.

Age 28 :-
I got visa to work in USA, but the internal hemmorid (No blood , but they said something like hyper papilla,it is something like your anus flesh get bluged during constipation and does not go back inside again) was still back in my mind , i want to sort out this as i don't want to spend huge money in USA, so i went through surgery and got removed.

Came to USA , yes i felt i'm in a new world , i like the facilities here in GYM , and it was time for me to  build my body,  i go to gym do a hard work out, burned calories.I was able to reduce my body weight to my ideal weight of 65kg.I was on Top notch i can say for sure.I even tried for six packs abs you know ,But at this point too , i should eat when i feel hungry, other wise acid reflux occurs and it  will make me very tired.

Age 29 : -
Went  back to india , i still continued my rigrous excercise and diet which i started in USA.I use to avoid fatty,oily foods,Tea,cofee and always eat vegetables and reduced majority of fried items.
I got married,but once got married , i lost interest in doing much of excercise and following correct diet  and again going through acid reflux and constipation.

Age 30:-
Came back to USA for work with family, still not doing any excercise ,but was eating whatever i like whether its fatty,oily ,cofee ,tea ,etc.Especially to mention all those burgers and Pizzas, after six months there comes a big trouble for me , yes ... i started getting discomfort on the upper right side,something holding me up ,pinching me ... , I felt some thing like where a gas is struck in that region and when i burp i get some relief.
I felt its time to meet the doctor,i already got my Endoscopy , colonoscopy with me which i took in india, i showed those results to them, they looked at it and said i dont have any issues with Stomach or with colonoscopy results.I said to them, i had stomach issues for a long time, so the doctor straight away asked me to take tests as mentioned below.This happened in June 2011.
Abdomen Scan :-
They scanned the gall bladder for anotomy, whether it got stones or bulged, but results are negative.Gall bladder is normal in size and and no stones.

Hida Scan :-
Here comes the HIDA SCAN,i was really wondering what this Hida scan is all about.They used to inject a radio active dye and CCK which is going to simulate like your intenstine asking for Bile enzyme which is used for digestion of food.During the test i  was feeling normal , no issues .I was very eager to know the results once they are done, but they are not ready to tell and asked me to follow up with doctor.

One find day i got the reports mailed to my address, it said ejection Fraction is 0%, follow up with doctor, i thought the results are normal :).
I went to doctor and he was going through my results one by one, suddenly he  said your gall bladder is not working and we need to do surgery to take it out, i thought  he was joking .But he again said it seriously.Ejection Fraction of 0% mean my gall bladder is not working at all. :(.

I asked him, is there any medicine for cure, but he said the only option is to remove it.I said i will wait an decide.I even consulted the surgeon, he said its my wish to remove or not but it does not harm in any way ,but i will be suffering with it.But one doctor said , leaving a non functioning organ will infect other organs and better to remove it  early.

All these 8 years suffering with my stomach issues and taking lot of test was no useful ness, even in India, they took gall bladder scan and not this Hida scan, Finally i came to know the gall bladder is the Culprit.Finally i was able to find answers for all of the issues which i was going through for past 8 years

That day many thougths were going in my mind
-I was not able to sleep.
-Lot of things were going on my mind
-Was wondering how i'm going to lead a life without a gall bladder.
-Why i'm having trouble at this young age
-What will happen after my gall  bladder gets removed, will there be any side effects
-Etc,etc
-None of my family members had gall bladder , why me .
-I don't drink alcohol or smoke , i know many who drink full time and have no issues.
-They use to say it will come for people who are 3F or 4f (Fat,female , fifty year of age,fried foods) which i don't fall in that category.


I was also having the following symptoms during that time.
1)I feel my stomach was filled with gas and always feeling full
2)Used to get Burp all the times and this eases a bit on pressure on stomach
3)Headache - during hunger times, i felt at back of my head , not sure this is of low sugar.
4)Blurry vision -I even went to the doctor ,they said my eye sight is good and ask me to put some liquid do avoid dryness in my eyes  ,as majority of time i use to work in front of computers.
5)short of breathness -as my stomach is filled with gas , i'm not able to breath easly.
6)Diziness - always i feel i'm going to faint
7)Not able to concentrate on anythings
8)I have to eat right away when i feel hungry ,else dizziness strikes
9)I used to suffer when i attend  one to one meetings  where i have to concentrate more
10)Fatigue and always feeling weak.

I again tested for diabetics(Because both of my parents are diabetic, for them it started at age of 50+ ) and results are negative.

In addition to discomfort in stomach due to gall bladder, i also had the headache which was occuring always along with this , although my nose was always congested and the climate is very cold here ,i cannot distinguish its because of gallbladder or weather conditions.But doctor says headache is not related to gall bladder.
The doctor advised me to go on BRAT diet, no fatty or oily foods.Again i started the excerise as summer started even though i'm not able to , slowly the discomfort i had in my gall bladder and head ache are reduced, so i started eating my normal foods again , again the problem started this time .

2013:-
Currently I'm getting diarrhea for almost 3 months , i have not taken any tablet so far , as whenever i go to doctor he use to advice me to take gall bladder out and will not give any temporary relief medicine.
I was not able to attend any party as i feel dizziness every time
I get diarrhea some time 1 to 3 times a day ,what ever i eat even though it is not fatty or oily.
Earlier there was discomfort, now slight pain at gall bladder.
Not able to interact with friends
Can't able to take my family to any mall or store feeling i will faint any time
Can't go to any hotel to have food on a weekend
Not able to excercise as i dont have much energy at all
My eyesight is really gone bad, the blurry ness increased compared to 2012.
Cannot attend any meeting and not able to talk much as i'm feeling full and short of breathness.
I'm not able to grow in my career and cannot concentrate on anythings
Things are getting bad as i grow old
I should tell this too, many of my black hair turned white :)
The issue which i was having once in every three months started occuring on daily basis
I even felt why i'm still alive in this world and have to go through this painful things.


Time has come where i need to take a decision, I don't want to live in this way forever.I have come across various internet sites which says to do gall bladder flush, check thyroid levels,Spincter of Oddi,etc and trying alternative medicine like Accupunture,Ayurveda,etc.I have already taken other test to make sure gall bladder is the only culprit.

I have set a deadline now for Jan,2015,This will be my very last try before i make my decision to take my stupid gall bladder out which is ruining  my life so far.I have seen people saying that they suffer with diaherria,still having stomach issues after removing gall bladder and Liver have to work more and will get liver/pancreas later on in life, and still have to eat a non fatty diet.I have also seen postive response like their problems are completely solved after gall bladder removal, if one does not opt for surgery, how long they can suffer with these kind of issues ?????? want to waste their entire life without sleep less night and nothing ???How long one can stick to BRAT diet ????.It affects their career,family and personal life :(, life is short and  I don't want this till end of my life.

Going back to india and planning to try alternative medicines like Accupunture and Ayurveda and will start my rigorous excercise again even though i'm not able to do it , slowly will start ,put some positive thoughts and see how things pan out.

I will also take the Hida scan and gall bladder scan to see how it looks now.Things are bit cheap in india compared to USA, I already spend $2k out of my pocket after insurane for these tests in USA.I would have used this money to go forth and back in india and gets things tested.

I will update the happenings once i reach there this May, a lot of test to be taken :) ....In mean time ,post your experiences, it might be before or after gall bladder removal.In this way everyone in this world suffering from Biliary Dyskinesia can take the right decision and lead a good life.